Family Blows Out Birthday Candles for Daughter with Fatal Sanfilippo Syndrome

O’Neill Family(NEW YORK) — The O’Neills huddled by the window with 5-year-old Eliza to sing “Happy Birthday,” but she was so busy watching people sing to her from across the street that she didn’t seem to mind when her brother blew her candles out for her.

Eliza and her family haven’t left their South Carolina home in six months in the hopes of keeping Eliza virus-free for the magical day that she gets into a clinical trial to cure her rare and deadly disease: Sanfilippo syndrome. The family has raised nearly $2 million to fund the …read more

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