Family Could Break GoFundMe Record to Save Child with Rare Disorder

Courtesy O’Neill family(NEW YORK) — The O’Neill family has been racing the clock to fund a cure for their 4-year-old daughter’s rare, terminal disorder, and in the process, they’re on track to break a fundraising record on GoFundMe.com.

Since early April, the O’Neills have raised more than $777,000 toward a cure for Sanfilippo syndrome, the deadly genetic disorder that’s now barely detectable in their daughter Eliza. It means she lacks an enzyme to break down heparin sulfate, which naturally occurs in cells, causing it to build up over time, causing a variety of medical problems. The result is that Eliza will …read more


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